Cardozo Journal of Equal Rights & Social Justice
Abstract
The note highlights the ethical, legal, and policy challenges surrounding Newborn Screening (NBS) programs, particularly the storage and use of newborn bloodspots. It argues that while these programs provide crucial health benefits, the lack of informed consent regarding the retention and use of bloodspots raises significant privacy concerns. The central argument is that balancing public health benefits with individual privacy rights requires robust informed consent frameworks to maintain trust and ensure scientific progress.
Disciplines
Health Law and Policy | Law | Medical Jurisprudence
Recommended Citation
Jaclyn S. D'Arminio,
"The Life of the Flesh is in the Blood": State Storage and Usage of Baby's Blood Sample,
18
Cardozo J. Equal Rts. & Soc. Just.
753
(2012).
Available at:
https://larc.cardozo.yu.edu/cardozoersj/vol18/iss3/8